Shoes.  Not an impressive word by any means.  They are simple, everyday things that we deem necessary for daily living. We all have them....some of us more than others.  We rarely give second thought to their existence until we wear out our favorite pair or need a special pair for an occasion or outfit. 

Tonight, a pair of toddler size 7, light-up, Buzz Lightyear  shoes made me cry.  I didn't trip over them.  I didn't stub my toe on them.  I didn't lose one.  I watched my baby put on his shoes by himself for the first time (nevermind they were on the wrong feet).  

A big deal?  No, not to most.  But for me it was a huge deal.  I noticed that he had his shoes on the wrong feet and asked the girls if they'd put his shoes on him.  They both said "No m'am, he put them on by himself."  Not that I thought my daughters were telling me a fib, but just out of curiosity I took them off of him, put them by the front door and walked away.  I watched from the dining room as he toddled over, picked up the shoes, and carried them back into the living room.  He sat down and quietly looked at the shoes for a minute, taking in every detail of Buzz Lightyear printed on the sides of them.  He slapped the bottom of one and watched the heel light up.  He then slapped the bottom of the other shoe to trigger the light -up heel.  I watched in amazement as my little boy lifted the velcro straps on one shoe, put his little foot inside it, and closed the velcro.  He repeated this with the other shoe and foot, with no hesitation or second thought.  His little legs started kicking wildly and soon the lights on the shoes were blinking like crazy.  Satisfied with what he'd done, he stood up, turned around and saw me watching.  He looked right at me and said "My shoes!" with a smile bigger than Texas.  I told him what a big boy he is and what a great job he'd done, and leaned in for a nice big squeeze, only to be told "Move Mommy. I go play."  

To him, this was no big deal.  He wanted me out of his way so he could go play.  For me, it was huge.  I thought back to the first time I saw him.  No bigger than a 20oz soda bottle, and just one ounce heavier than a loaf of Sunbeam sandwich bread. His feet were so tiny, and still partially translucent.  His entire foot fit perfectly from the tip of my thumb to the first joint.  Approximately, just slightly more than an inch long. He wasn't allowed to wear clothes, but even if he were, there were none small enough to fit him. There were definitely no shoes to fit him.  He couldn't wear socks for the first 2.5 months.  At first it was because his skin was so fragile, and then later because his feet were bombarded daily with heel sticks.  I couldn't hold him and love on him at all. Due to the amount of machinery and tubing that covered most of his little body, the only places I could touch my baby were his tiny hands and feet. After the brain bleed and diagnosis of Cystic Periventricular Leukomalacia (Cystic PVL),  I  often wondered if he would ever need shoes.  Would he be able to walk?  Would he be able to see to put them on and if so, would he have the coordination to do it?  Will he run and play like most children?  Will I ever see muddy little shoe prints on my kitchen floor?  He was 5 months old the first time he wore shoes.  Infant size 00, soft crib shoes.  

Trevor doesn't just "need" shoes.  He can see them.  He runs and plays like other children.  I have seen muddy little shoe prints on my kitchen floor....and yes, he has the coordination to put them on.   Obviously, he has made it past the worst of our worries.  He survived.  He's healthy.  He's mostly like any typical 2 year old.  There are still many things that I have questions about, and most of those answers will come in good time. Tonight, I have one less question to mark off of my very long list.  But, now it's replaced with one more.  Who in the world will ever be "big enough" to fill his shoes?  In my mind, no one.  

Shoes.  That's a big word tonight.
 
Trevor is 2 1/2 yrs old now, and getting smarter every second!  He weighs 28lbs and is 33 inches tall.  He is still on the small side for his age, but he's catching up quickly.  In terms of cognitive development, he's excellent.  His vocabulary is close to 100 words, maybe more.  He speaks pretty clear and in small sentences. He also follows 2 step directions (when he's not being hard-headed).  We have discovered that he LOVES baseball.  He hits a ball off of a tee with a bat (plastic, or course), throws like a champ, and loves wearing a helmet!  He will sit with Dennis and watch Major League Baseball games on the TV. His favorite team is the Braves (ok...so I'm stretching it here..lol).  I recently have began introducing coloring/writing skills to him.  He likes the idea, and tries very hard, but mostly just scribbles and calls his "artwork" a "baseball."  He can count to 11 by himself and identify numbers 1-10, and a few letters.  His favorite letter is "H."  Dennis has a Houston Astros cap with a big "H" on it, and Trevor loves it.  

As far as health-wise, he's doing great.  He seems to have finally outgrown the chronic cough (knock on wood).  He does have a few dental issues, but those will be addressed next month at TCH.  We learned a few days ago that he allergic to vinegar.  What kid is allergic to vinegar!?!  Mine..of course.  We discovered this after noticing red blotches around his mouth after he eats salsa or pickles.  Has to be the vinegar....

His current favorite toy (aside from the bat, ball, and helmet) is a plastic slide.  He even "takes turns" with Cabbage Patch dolls!  :)  

Potty Training, you ask?  I will just say that we are actively working on it, but no where near mastering it yet.  No worries!  He will do it in his own time, just like everything else <3  

April 21st, Team Trevor participated in the annual March of Dimes, March For Babies 3K.  We had 26 walkers and 2 stroller riders!  Our team surpassed last year's goal and our total donation is upward of $2000.00  This is Trevor's most recent picture, cheering and clapping with the crowd as we crossed the 3K finish line.
 
Thursday night, Trevor had a cough that began to worsen and he started running fever.  Friday morning at 7am, I knew something was really wrong.  His breathing was very labored, fast, and shallow.  Sure signs that he was not getting adequate oxygen.  I took him straight in to his pediatrician's office.  Just a few minutes after arriving, they were getting papers ready to admit him to the hospital.  Dr. Hubble said he had some type of lung infection and was obviously having difficulty breathing.  After arriving at the hospital, they started IV antibiotics, steroids, and nebulizer treatments every hour.  He was tested for RSV and it came back positive.  RSV is a very dangerous virus for babies that were premature like Trevor.  On the 2nd day, he was able to tolerate nebulizer treatments every 2 hours, and now on the 3rd day, he is getting them every 4 hours.  I can see a drastic improvement this morning.  I am so thankful that he is improving so quickly and responding well to all of the treatments.  I haven't seen him so sick since he was in the NICU.  It was terrifying, because it started so quickly and turned bad so fast.  Most children will have contracted RSV by age 2yrs, but most are not affected as badly as Trevor at this age.  In adults, RSV is simply the virus that causes a common cold.  No big deal.  But for some reason, it is very dangerous to little miracles like my Trevor, and can make them very sick.  
 
It's been a while since I last updated.  Trevor is doing well, aside from this chronic cough!  He was sick about 2 weeks ago.  He is well now, but still has an awful cough.  When I took him to the pediatrician 2 weeks ago, he weighed 26lbs!   He is so smart.  The littlest things that he does, makes my eyes tear up. I just can't believe how wonderfully well he is progressing.  His newest accomplishment is talking in small sentences.  He says things like "Mama, I hungry"  "I tired" and when I put on his shoes, he will say "Shoe...Are you?"  (Shoe...where are you is a little game we play).  I have not noticed any apnea episodes in several weeks, which is great!  All in all, things are wonderful with Trevor!

We took the kiddos to see Santa this past weekend and I was a little worried that Trevor would completely freak out, but he didn't!  He LOVED Santa!  I have a feeling that "Santa" is going to be very good to Trevor this year ;)
 
Trevor turned 2 years old October 19th.  Gosh, it's so amazing to see how far he has come!  Our family has been blessed over and over again.  We are so thankful for our little Trevor.  Thankful that he is alive and well, and tearing up things like a normal 2 year old!  His party was awesome! It was "barnyard" themed, and turned out great!  He was showered with so many gifts that some of them are still in the boxes until I can clean out the toy box to make room for the new ones. He was given a Little Tykes bar-b-que grill, lawnmower, electric Mater 4 wheeler, his 1st fishing pole, a cowprint table and chair to go in his barn play house his Daddy built him, trucks, cars, clothes, t-ball set, barnyard play set, his first Mickey Mouse, and many, many other wonderful things!  I bought him the cutest little cap that says "Stud Muffin" on it and when he opened it, he quickly sailed it across the patio with much disgust.  I've tried endlessly to put it on him, and he rips it off his head and throws it to the ground every time!  He does NOT like the hat Mommy picked out!  It's funny though, because he loves wearing caps and wears them all the time....just not that one haha! 
 
Please go vote for Trevor!  You can vote once a day, every day until November 9th.  Trevor definitely deserves this award!  
 http://wildfireapp.com/website/6/contests/154302/voteable_entries/32164934?order=votes#
 
Trevor is scheduled for a sleep study on October 25th in Houston.  He is still having a few episodes of apnea, so maybe the study will give us some answers. He also has an appointment with Ages & Stages (developmental evaluation) at Texas Children's in Houston on October 26th.  Dennis and I are talking about possibly staying the night in Houston on the 25th after the sleep study.  The test will take several hours and we have to be back in Houston the next day by 8:30am, so it would be much easier on us to just stay.  It makes it a little tricky though, because the girls have school.  Not sure what the definite plan is yet, but either way, we will make sure that Trevor is there for both appointments.  

On a brighter note, Trevor has started eating again! He is still not eating as much as he normally does, but he IS at least attempting all three meals.  :)  I noticed tonight that he looks a little peaked.  Not sure, but I think he may be coming down with something. 

Apnea?

10/13/2011

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Trevor had a few episodes of apnea last night.  Each one lasted only seconds, but was definitely enough to scared me to death.  Tomorrow can not get here soon enough!  I'm really getting worried about my little man.  
 
For the last few weeks, I have noticed that Trevor has began to refuse certain foods. He acted like he was having difficulty swallowing them.  He would chew the food, and then spit it out, most of the time gagging as well.  If any food remained on his tongue, he would stick it out and cry until I wiped it off.  This is definitely not typical for Trevor.  He is a very good eater, and always has been.  The amount of foods he is refusing is increasing.  In the last 3 days, Trevor has not eaten much at all.  We have an appointment with a specialist in Houston on Friday.  I am praying that this is nothing serious.  For the time being, I am monitoring his weight to make sure that he does not lose too much.  He is also drinking PediaSure to help with calorie intake until he begins to eat normally again.  Trevor weighed 25lbs 2 oz about 2 weeks ago.  He weighs 24lbs now.  
 
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Dennis built Trevor a "barn" playhouse!  It is so cute and Trevor loves it!  Overall, Trevor is doing exceptionally well.  He still has some speech delays, but nothing that is of concern.  He has an appointment at Texas Children's on the 26th for the Ages & Stages Clinic.  It's for his 2 year old developmental evaluation.  I am a little nervous, but at the same time, I know that he is doing wonderfully.  It's just a little unnerving to think that his "2 years" have come and gone.  Age 2 is when doctor's say that preemies should be "caught up."  I guess we will see what the developmental eval shows, and go from there.  :)