Obviously, my brain was on vacation yesterday.  I miscounted Trevor's days in the NICU.  TODAY was actually his 100th day.  I didn't realize I had miscounted until I heard Dr. Ford say it this morning while rounding on Trevor.  Oh well, I guess we all make mistakes :)  Anyway, I visited Trevor again today and I sure missed Nurse Debbie!  His nurse today was extremely nice, but there is a special place in our hearts for Debbie and Celna.  It sure makes it so much easier to leave him there when we know that he is with someone who adores him like they do.  If you didn't know any better, you would think they were family.  Atleast, that's the way we think of them.  Afterall, we entrust them with one of our most prized posessions.  I think Celna may be back tomorrow.  I sure hope so! 

Things are well underway in preparation for Trevor's discharge.  He had his swallow study this morning and Dr. Cox said that his swallowing ability is improving, but he will remain on thickened feeds for now.  Tomorrow is the eye exam.  It's the only thing holding him back.  I am praying with every fiber of my being that his eyes have started to repair, or atleast not be any worse.  Today his home oxygen equipment was delivered and set up.  Tomorrow we will have his prescriptions filled.  He is only coming home on 2 prescriptions, Flecainide for the Atrial Tachycardia and Prevacid for refulx.  This is a blessing in itself!  And the best news is, he will outgrow both meds and the oxygen.  As we all know, Trevor does things ONLY when he gets good and ready.....so it's all up to him.  I have a feeling he will not be on the oxygen too long.  But we are definately not going to rush ANYTHING.  The poor little guy has been through enough, and now it's time for him to relax at home. 

The first few weeks home will be filled with doctor appointments, most of them in Houston.  He will have to see a pulmonologist, cardiologist, ENT, opthamologist, and of course his regular pediatrician. Additionally, we are setting up home visits for Early Childhood Intervention and possibly physical and occupational therapy. The latter 3 are to ensure that he is developing properly and meeting milestones according to his adjusted age.  It will be hectic, but we are definately up to the challenge!  I am very excited, and so thankful that he may come home this week.  

We bought him a travel swing today.  Now he can swing whenever and wherever he wants to! Tonight he weighs 6lbs 3oz is 1

Today Trevor is 99 days old!  He is doing very good with his bottle feeds and his nurse said tonight that he is wanting more after the bottle is finished!  Little pig!  I took more pictures today. Nana Campbell found the cutest little striped pants and rocking horse onesie!  It fits Trevor really good.  Today was the first time he has ever worn a pair of pants!  The picture is cute!  

This morning, Dr. Ford gave me an expected discharge day of next week for Trevor! (as long as his eye exam is okay) I am so excited and I know that Trevor is ready to be home now.  I can tell by looking at him that he is really starting to miss me.  He cries now when I have to put him down to leave.  I do not like it at all!  I need him home!!!!!

Today is the day my little Trevor would be due.  Ironically, he is exactly 3 months old today.  He weighs 5lbs 13oz and is 16.5 inches long.  I am very excited about him being 3 months old because at one time, we never thought it would happen.  It's also bittersweet because I think about how big and healthy he could have been if he could have been born today.  He probably would have been able to come home 2 days later. 

Now we have another waiting game.  This morning Trevor went back into Atrial Tachycardia and the electrophysiologist along with his cardiologist  decided to increased his dose of Flecainide.  He will remain in Level 3 NICU until further notice.  The cardiologist said it was fine by her to move him to Level 2, but the Neonatologist says it is better to leave him in level 3.  I miss him so bad, and I know that as long as he is in Level 3, he won't be coming home soon. But I also realize that they are taking extremely good care of Trevor and that he is not ready to come home yet.  We certainly don't want him home before he is  healthy enough.   

Yesterday, I put socks on him for the first time ever!  He did not appreciate it much, and definately prefers to be barefooted.  We also noticed that he is very sensitive to the smell of rubbing alcohol.  Each time the nurses clean any thing near him with alcohol (like IV ports), he starts crying.  Also, if I rub my hands with Purell and pick him up soon after (while the smell is still apparent) he cries.  It really is not surprising that he does this, given the fact that almost everytime rubbing alcohol is near him, he is getting blood drawn or an IV inserted.  I also think that is why he does not like socks being put on him.  Most of the time if someone is touching his feet, it means he is about to get a heel stick.  It's amazing how smart he is and that he relates thing together like that.  Just more proof that my little "butterbean" is coming along nicely in terms of intellectual development.